Family Management on Children with Autism: A Phenomenological Study

Winarianti; Cau Kim  Jiu; Tutur  Kardiatun; Wida Kuswida  Bhakti

doi:10.21776/ub.ijds.2022.009.02.10

Authors

Winarianti Master Program of Nursing Student of Sekolah Tinggi Ilmu Keperawatan Muhammadiyah Pontianak https://orcid.org/0000-0003-2345-9458
Cau Kim Jiu Sekolah Tinggi Ilmu Keperawatan Muhammadiyah Pontianak
Tutur Kardiatun Sekolah Tinggi Ilmu Keperawatan Muhammadiyah Pontianak https://orcid.org/0000-0001-5431-0555
Wida Kuswida Bhakti Sekolah Tinggi Ilmu Keperawatan Muhammadiyah Pontianak

DOI:

https://doi.org/10.21776/ub.ijds.2022.009.02.10

Keywords:

Autism, Extended Family, Nuclear Family, Parenting, Single Parent

Abstract

Background: Children with autism had disorder in their physical, mental, and cognitive development and socialization function, which then brought burden in family care.

Method: This research used phenomenological approach by involving three type families and was conducted in Pontianak, West Borneo.

Result: This research found four themes in nuclear families: the role of parent in treatment of ASD, the role of nuclear family as a caregiver for ASD, the virtue of therapy for children and mood change as parent. Three themes in extended family: the role of parent in treatment of ASD, the role of extended family as a caregiver ASD and mood change as parent. Three themes in single parent: the role of single parent with ASD, the virtue of therapy for children and consequences as a single parent. Conclusion: Each type of family had differences of parenting pattern and burden level in treatment of autistic children.

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