The Paradigm of Disability: A Discussion of Participation of Persons with Disability in Development in Indonesia

Dewi Anggraini; Muhamad  Anas; Wike Wike

doi:10.21776/ub.ijds.2022.009.02.02

Authors

Dewi Anggraini Brawijaya University
Muhamad Anas Brawijaya University
Wike Gender Studies, Brawijaya University

DOI:

https://doi.org/10.21776/ub.ijds.2022.009.02.02

Keywords:

Paradigm of Disability, Participation, Inclusion, Development

Abstract

The aim of this literature study is to catch up on the inclusive development issues in the conception of disability perspective and participation of persons with disabilities in the development goals. This topic is in line with global development which targets seek to accommodate the needs of every citizen including persons with disability to be involved in development. The researcher is using a qualitative approach to construct the conceptual discussion between disability conception and the practice of participation. The data were documented and collected from articles of research that have Indonesian context and legislation. The discussion is described in 4 (four) areas of basic development which are education, health, employment, and accessibility.

References

Ali, A., Scior, K., Ratti, V., Strydom, A., King, M., & Hassiotis, A. (2013). Discrimination and Other Barriers to Accessing Health Care: Perspectives of Patients with Mild and Moderate Intellectual Disability and Their Carers. PLoS ONE, 8(8), e70855. https://doi.org/10.1371/journal.pone.0070855

Amponsah-Bediako, K. (2013). Relevance of Disability Models from the Perspective of a Developing Country: An Analysis. Developing Country Studies, 3(11). www.iiste.org

Apsari, N. C., & Raharjo, S. T. (2021). Orang dengan Disabilitas: Situasi Tantangan dan Layanan di Indonesia. Buletin Penelitian Sistem Kesehatan, 24(3), 159–169. https://doi.org/10.22435/hsr.v24i3.3069

Bappenas RI. (2020). Menuju Pembangunan Inklusif dengan Mengikutsertakan Penyandang Disabilitas dalam Tradisi Baru. Bappenas.Go.Id. https://www.bappenas.go.id/id/berita-dan-siaran-pers/menuju-pembangunan-inklusif-dengan-mengikutsertakan-penyandang-disabilitas-dalam-tradisi-baru/

Barnes, C. (2000). A Working Social Model? Disability, Work and Disability Politics in the 21st Century. Critical Social Policy, 20(4), 441–457. https://doi.org/10.1177/026101830002000402

Bringolf, J. (2008). Universal Design: Is it Accessible? Multi: The RIT Journal of Plurality and Diversity in Design, 1, 45–52. https://www.researchgate.net/publication/26543865_Universal_Design_Is_it_Accessible

Brown, K., & Rasmussen, K. (2019, July 19). The Sustainable Development Goals in 2019: People, Planet, Prosperity in Focus. UN Foundation. https://unfoundation.org/blog/post/the-sustainable-development-goals-in-2019-people-planet-prosperity-in-focus/

Department of Economic and Social Affairs Division for Social Policy and Development. (2003). The United Nations and Disabled Persons -The First Fifty Years. United Nations.

Dethmers, F. (2010). Disabilitas dan Perangkap Kemiskinan. In C. Reckinger & M. Y. Winarno (Eds.), A Bridge Over Troubled Water (p. 41). Caritas Germany Country Office Indonesia.

DFID. (2000). Disability, Poverty, and Development. In Stairway Communication. DFID Information Department.

FMPP Brebes. (2019). Banyak Sekolah Menolak Siswa Berkebutuhan Khusus. Forum Masyarakat Peduli Pendidikan Kabupaten Brebes Provinsi Jawa Tengah. https://fmppbrebeskab.com/banyak-sekolah-menolak-siswa-berkebutuhan-khusus/

Hasibuan, S. U., & Ayuningtyas, D. (2021). A Literature Review: Gambaran Perwujudan Puskesmas Ramah Disabilitas pada Beberapa Wilayah di Indonesia. Jurnal Medika Hutama, 3(1), 1390–1399. http://jurnalmedikahutama.com

Hastuti, Dewi, R. K., Pramana, R. P., & Sadaly, H. (2020). Kendala Mewujudkan Pembangunan Inklusif terhadap Penyandang Disabilitas. https://smeru.or.id/id/content/kendala-mewujudkan-pembangunan-inklusif-terhadap-penyandang-disabilitas

Hendrowati, T. Y. (2017). Persepsi Orang Tua terhadap Pendidikan Inklusif Sekolah Dasar di Provinsi Lampung. Jurnal Fokus Konseling, 3(1), 78–84. https://doi.org/10.31004/basicedu.v1i1.17

Hosking, D. L. (2008). Critical Disability Theory. In Lancaster University. Lancaster University. https://www.lancaster.ac.uk/fass/events/disabilityconference_archive/2008/papers/hosking2008.pdf

ICCTF. (2021). Tentang SDGs. ICCTF (Indonesia Climate Change Trust Fund). https://www.icctf.or.id/sdgs/

Irwanto, Kasim, E. R., Fransiska, A., Lusli, M., & Siradj, O. (2010). Analisis Situasi Penyandang Disabilitas di Indonesia: Sebuah Desk Review.

Japan International Cooperation Agency (JICA). (2015). Data Collection Survey on Disability and Development in Indonesia Final Report.

Ju’beh, K. al. (2017). Disability Inclusive Development Toolkit CRPD: Influencing Everything We Do (Vol. 1). CBM International. www.cbm.org

Komardjaja, I. (2001). The Malfunction of Barrier-Free Spaces in Indonesia. Disability Studies Quarterly: The First Journal in The Field of Disbaility Studies, 21(4), 97–104.

Komardjaja, I. (2010). New Cultural Geographies of Disability: Asian Values and The Accessibility Ideal. Social and Cultural Geography, 2(1), 77–86. https://doi.org/10.1080/14649360020028285

Lang, R., Schneider, M., Kett, M., Cole, E., & Groce, N. (2018). Policy Development: An Analysis of Disability Inclusion in a Selection of African Union Policies Inclusive. Microeconomics: Welfare Economics & Collective Decision-Making EJournal. https://doi.org/10.1111/dpr.12323

Madden, R. H., Lukersmith, S., Zhou, Q., Glasgow, M., & Johnston, S. (2020). Disability-related Questions for Administrative Datasets. International Journal of Environmental Research and Public Health, 17(15), 1–17. https://doi.org/10.3390/ijerph17155435

Magribi, L. O. M., & Suhardjo, A. (2004). Aksesibilitas dan Pengaruhnya terhadap Pembangunan di Perdesaan: Konsep Model Sustainable Accessibility pada Kawasan Perdesaan di Propinsi Sulawesi Tenggara. Jurnal Transportasi, 4(2), 149–160. https://doi.org/10.26593/jtrans.v4i2.1775.%25p

Nuraviva, L., Harsasto, P., & Alfirdaus, L. K. (2017). Aksesibilitas Penyandang Disabilitas terhadap Fasilitas Publik di Kota Surakarta. Journal of Politic and Government Studies, 7(1), 1–10.

Pratiwi, J. C. (2015). Sekolah Inklusi untuk Anak Berkebutuhan Khusus: Tanggapan terhadap Tantangan Kedepannya. In Prosiding Seminar Nasional Pendidikan UNS & ISPI Jawa Tengah 2015 (Issue November, pp. 237–242).

Reckinger, C. (2010). Mengenal Rehabilitasi Bersumberdaya Masyarakat. In C. Reckinger & M. Y. Winarno (Eds.), A Bridge over Troubled Water: towards an Inclusive Society in Indonesia (pp. 18–27). Caritas Germany Country Office Indonesia.

Salim, I. (2015). Perspektif Disabilitas dalam Pemilu 2014 dan Kontribusi Gerakan Difabel Indonesia bagi Terbangunnya Pemilu Inklusif di Indonesia. The POLITICS: Jurnal Magister Ilmu Politik Universitas Hasanuddin, 1(2), 127–156.

Saputra, A. (2016). Kebijakan Pemerintah Terhadap Pendidikan Inklusif. Jurnal Ilmiah Tumbuh Kembang Anak Usia Dini, 1(3), 1–14.

SIGAB. (2020). Yang Bergerak dan Yang Terdampak Di Masa Pandemi: Suara Disabilitas dari Indonesia. SIGAB. https://ncovid19.sigab.or.id/2020/06/09/yang-bergerak-dan-yang-terdampak-di-masa-pandemi-suara-disabilitas-dari-indonesia/

Subasno, Y. (2017). Perception of community volunteer toward the fulfillment of rights of persons with disabilities. SAPA: Jurnal Kateketik Dan Pastoral, 2(2), 1–88.

Tan, B. S., Wilson, E., Campain, R., Murfitt, K., & Hagiliassis, N. (2019). Understanding Negative Attitudes Toward Disability to Foster Social Inclusion: An Australian Case Study. In Inclusion, Equity and Access for Individuals with Disabilities (pp. 41–65). Springer Singapore. https://doi.org/10.1007/978-981-13-5962-0_3

The World Bank. (2011). Laporan Pembangunan Dunia 2011: Konflik, Keamanan, Pembangunan.

Thohari, S. (2011). Contesting Conception of Disability in Javanese Society after The Suharto Regime: The Case of Yogyakarta, Indonesia [University of Hawai’i]. https://scholarspace.manoa.hawaii.edu/bitstream/10125/101399/1/Thohari_Slamet_r.pdf

Thohari, S. (2014). Pandangan Disabilitas dan Aksesibilitas Fasilitas Publik bagi Penyandang Disabilitas di Kota Malang. Indonesian Journal of Disability Studies, 1(1), 27–37. http://IJDS.ub.ac.id

Tsai, I., & Ho, M. (2010). An Institutionalist Explanation of the Evolution of Taiwan’s Disability Movement: From the Charity Model to the Social Model. Journal of Current Chinese Affairs, 39(3), 87–123. https://doi.org/10.1177/186810261003900304

Tsaputra, A. (2019). Disability Inclusive Budgeting in Indonesia: A pathway to difabel citizenship.

UNICEF. (2013). Keadaan Anak di Dunia 2013 Rangkuman Eksekutif: Anak Penyandang Disabilitas.

Waki, A. (2017). Persepsi Orang Tua terhadap Pendidikan Inklusif Sekolah Dasar di Kecamatan Gunung Putri Kabupaten Bogor Provinsi Jawa-Barat. Jurnal Basicedu, 1(1), 79–83. https://doi.org/10.31004/basicedu.v1i1.17

Wike, W. (2015). Mother’s Perspective on Service Delivery for Children with Autism in A Regional Indonesian City [University of Canberra]. https://doi.org/10.26191/be6p-ka56