Family Support for the Independence of Children with Special Needs for Self-Care: Literature Review

Authors

  • Ita Pursitasari Bandung Health Polytechnic Bogor Nursing Study Program, Bogor, Indonesia

DOI:

https://doi.org/10.21776/ub.ijds.2019.006.01.9

Keywords:

Children With Special Needs, Self care, Family Support

Abstract

Children with Special Needs are children who have long-term problems on the physical or mental causes a child unable to carry out daily activities and interact with other people in the community (Cavallo, 2009). The limitations experienced by Them cause problems in self-care which result in health problems. So They can live quality, especially in terms of self-care needed support from his family. The goal is to find out family support for the independence of children with special needs in carrying out self-care. The method used is literature by taking some of the results of previous research from several scientific articles in the journal. The results of the literature review show that there is a need for parental support to establish children with special needs in carrying out self-care.

References

Berbiglia, V. A. (2011). The Self Care Deficit Nursing Theory as a Curriculum Conceptual Framework in Baccalaureate Education. Journals of Nursing Science 24(2) 137-145 (1). https://doi.org/10.1177/0894318411399452.

Bowden, V.R. (2010). Children and their families: The continuum of care (2nd ed.). Philadelphia: Lippincott Williams & Wilkins.

Brolin Laftman S, Ostberg V. (2006) The pros and cons of social relations: An analysis of adolescents' health complaints. Soc Sci Med. 2006;/63:/611 23.

Cavallo, S., Feldman, D. E., Swaine, B., & Meshefedjian, G. (2009). Is parental coping associated with the level of function in children with physical disabilities? Child: Care, Health and Development, 35(1), 33-40. https://doi.org/10.1111/j.1365-2214.2008.00884.x.

Cohen, S. R., Holloway, S. D., Dome­nguez-Pareto, I., & Kuppermann, M. (2014). Receiving or believing in family support? Contributors to the life quality of Latino and non-Latino families of children with intellectual disability. Journal of Intellectual Disability Research. 58(4), 333-345. https://doi.org/10.1111/jir.12016

Cervadio, Kathleen. (2013). Attitudes of Nurses Toward Children With Disabilities: The Attitudes of Nursing Students Toward Children With Disabilities: An Experimental Design. International Journal of Physical Medicine & Rehabilitation 01 (05): 1-15. https://doi.org/10.4172/2329-9096.1000140.

Cameron, Debra, Tammy Craig, Brydne Edwards, Cheryl Missiuna, Heidi Schwellnus, and Helene J. Polatajko. (2017). Cognitive Orientation to Daily Occupational Performance (CO-OP): A New Approach for Children with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics 37 (2): 183-98. https://doi.org/10.1080/01942638.2016.1185500.

Demographics, Rehabilitation Research and Training Center on Disability Statistics and. (2016). 2016 Disability Statistics Annual Report. https://disabilitycompendium.org/sites/default/files/user uploads/2016_AnnualReport.pdf.

Faulks, D., Norderyd, J., Molina, G., Macgiolla Phadraig, C., Scagnet, G., Eschevins, C., & Hennequin, M. (2013). Using the International Classification of Functioning, Disability and Health (ICF) to Describe Children Referred to Special Care or Paediatric Dental Services. PLoS ONE. 8(4). https://doi.org/10.1371/journal.pone.0061993.

Francis, Mannion & Leader. (2017). The Assessment and Treatment of Toileting Difficulties in Individuals with Autism Spectrum Disorder and Other Developmental Disabilities. Rev J Autism Dev Disord (2017) 4:190-204 DOI 10.1007/s40489-017-0107-3.

Hockenberry, M.J. & Wilson, D. (2009). Wong's Essentials of pediatric nursing. (8th ed.). St. Louis: Mosby Elsevier.

Jukes.(2011). Challenges affecting the learning disability nursing role: past and present. Learning disability practice. Volume 14. No 10.

Limeres., et al. (2013). A new indicator of the oral hygiene habits of disabled persons: relevance of the carer's personal appearance and interest in oral health. International Journal of Dental Hygiene. DOI: 10.1111/idh.12033.

Liss, M., Harel, B., Fein, D., Allen, D., Dunn, M., Feinstein, C., & Rapin, I. (2001). Predictors and correlates of adaptive functioning in children with developmental disorders. Journal of Autism and Developmental Disorders, 31, 219-230.

Mundhenke, Hermansson, & Natterlund. (2010). Experiences of Swedish children with disabilities: activities and social support in daily life. Scandinavian journal of occupational Therapy. ISSN 1103-8128 print/ISSN 1651-2014 online # 2010 Informa UK Ltd. (Informa Healthcare, Taylor & Francis AS) DOI: 10.3109/11038120903114386.

Ningsih, Warti, Purwanta Purwanta, and Sri Hartini .(2018). Self-Care Training Improves the Attitudes and Skills of Caregivers for Children with Physical Disability. Jurnal Ners. 13 (1): 9-17.

Phadraig.,et al.(2014). What Should Dental Services for People with Disabilities Be Like? Results of an Irish Delphi Panel Survey. PLoS ONE 9(11): e113393. doi:10.1371/ journal.

Rinald, K., & Mirenda, P. (2012). Effectiveness of a modified rapid toilet training workshop for parents of children with developmental disabilities. Research in Developmental Disabilities, 33(3), 933-943. https://doi.org/10.1016/j.ridd.2012.01.003.

Smits.,et al,(2011). Development of non-verbal intellectual capacity in school-age children with cerebral palsy. Journal of Intellectual Disability Research. volume 55 part 6 pp 550-562 june 2011. doi: 10.1111/j.1365-2788.2011.01409.x.

Shepherd,Landon & Goedekc. (2017). Symptom severity, caregiver stress and intervention helpfulness assessed using ratings from parents caring for a child with autism. The Author(s) 2017 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav DOI: 10.1177/1362361316688869.

Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland adaptive behavior scales (2nd ed.). Circle Pines: AGS Publishing.

Tan.,et al. (2014). Long-Term Trajectories of Health-Related Quality of Life in Individuals with Cerebral Palsy: A Multucenter Longitudinal Study. Archieves of Physical Medicine and Rehabilitation. 95: 2029-39 http;//dx.doi.org/10.1016/j.apmr.2014.04.031.

Teles, Fernanda Moreira, Rosa Resegue, and Rosana Fiorini Puccini. (2016). REVISTA PAULISTA Care Needs of Children with Disabilities - - Use of the Pediatric Evaluation of Disability Inventory. Revista Paulista de Pediatria (English Edition) 34 (4): 447–53. https://doi.org/10.1016/j.rppede.2016.02.015

Vaitilavicience.M.L.& Owens.j. (2018). Children with disabilities at risk of poor oral health in the republic of Lithuania: A Retrospective descriptive service evaluation. World medical and health policy.doi: 10.1002/wmh3.275.

Wilson, N. J., Cumella, S., Parmenter, T. R., Stancliffe, R. J., & Shuttleworth, R. P. (2009). Penile hygiene: Puberty, paraphimosis and personal care for men and boys with an intellectual disability. Journal of Intellectual Disability Research, 53(2), 106–114. https://doi.org/10.1111/j.1365-2788.2008.01133.x

Yadwinder, Kaur, and Yadwinder Kaur. (2017). Family Support Model for the Management of Disabled Children Family Support Model for the Management of Disabled Children. Studies and Home Community Science Sci, 4(3): 179-184 7189. https://doi.org/10.1080/09737189.2010.11885320.

Zacharin, Margaret, Ingrid Savasi, and Sonia Grover. (2010). The Impact of Menstruation in Adolescents with Disabilities Related to Cerebral Palsy. Archives of Disease in Childhood 95 (7): 526–30. https://doi.org/10.1136/adc.2009.174680

Zarchi, M S, S M M Fatemi Bushehri, and M Dehghanizadeh. (2018). SCADI: A standard dataset for self-care problems classification of children with physical and motor disability.International Journal of Medical Informatics. https://doi.org/10.1016/j.ijmedinf.2018.03.003.

Downloads

Published

25-05-2019

How to Cite

Pursitasari, I. (2019). Family Support for the Independence of Children with Special Needs for Self-Care: Literature Review. Indonesian Journal of Disability Studies, 6(1), 64–72. https://doi.org/10.21776/ub.ijds.2019.006.01.9

Issue

Section

Articles

Similar Articles

You may also start an advanced similarity search for this article.